A dingy little window in

I'm having a Bad Day.

Yesterday was supposed to be my first appointment with my new therapist through the UCD counselling center. I've already done my intake and everything but because of spring break and some trip or other the therapist had last week yesterday was the earliest we could schedule an appointment. When the alarm went off at 8:30 I looked it over, thought about how desperately I wanted to sleep, and disabled the alarm.

Lora called me later that day and left a message since I looked at the phone, saw who it was, and ignored the call. In the gentle, unaccusatory therapist tone, she said how her schedule had me down for ten and it was now noon and she wondered where I was. She made sure to preface any sort of admonishment with an, "I know we haven't talked for a few weeks, so I'm sure you must have forgotten or something came up." Yeah, my anorexia came up. And it says it doesn't want any more therapy.

I woke up around 12:45, meaning I should have gotten my first meal around one. I finally decided to prepare something around 2:30. According to the clock on my cell phone it is now 2:51 and my two peanut butter and jelly sandwiches and glass of milk are barely touched.

Every time I pick the first sandwich up for a nip (bite wouldn't be accurate today) I think about the list of "behaviors" I'm engaging in... Small bites, check. Excessive chewing, check. Eating in order, check. I've got a couple of sandwich rituals which aren't on EDC's list but those certainly fall under the behaviors category for me, too. Eat in a spiral until the crust is gone, avoiding any actual bread content if humanly possible. Once completed, eat back and forth from top to bottom. Rest sandwich on the back of the hand instead of holding it.

One of the few big annoyances I found at EDC was their list of behaviors, complimented by a thoroughly unhelpful list of ways to counteract those behaviors. Instead of taking miniscule bites, take normal bites. Instead of chewing too much, only chew necessary number of times before swallowing. Vary order of foods instead of eating safe foods first. Etc.

I feel like it's been forever that I've been doing this damn recovery thing. I'm bored with food and eating. I feel like I eat the same things over and over and even if I vary the way it's presented it's still the same basic food. Really, there are only so many choices. I don't know whether it's worse that I've been maintaining or worse that I'm supposed to be gaining weight... Every time I go in to see the nutritionist she does her little blind weigh-in with the somehow muted old scale, purses her lips and tells me that I'm not losing weight but I'm really not gaining it either. Really, though I feel like my body has exploded from its acceptable confines, I'm only about back to my pre-relapse-that-put-me-in-the-hospital weight.

As always, one of the biggest things holding me in check is the fear of financial detriment. I've got such a tenuous grasp on finances right now and if I start to hard-core relapse again my quality of work will be down, my energy and hours will be down, my medical expenses will be up. Aside from that, so much has been invested in my treatment over the last few months that it feels like a betrayal of the basest kind to just jump back in to my eating disorder.

Has it really only been two and a half months since I started up again with recovery? Crap. And I'm supposed to stick with this thing for the rest of my freaking life?

I miss the excitement of dying. That sounds ridiculous and counter-intuitive but it's true. As boring as starvation is, there is still a strong element of danger and thrill at the fact that I'm a few inches from death at any given moment. For one thing, when there's no food in my system I'm basically living off whatever adrenaline I can muster to get me on my feet. I don't know why it feels like such a testament to the will to be able to say, "I'm starving myself to death but I'm not going to actually die! Just you watch!" but it does. I guess in its own way self-imposed starvation is a David Blaine type of performance art.

3:06 and I'm almost halfway through sandwich number one.

My head hurts. I miss feeling invincible by being able to go without anything resembling food all day, for several days or weeks or whatever. Now I start to get tetchy and dizzy after maybe two hours. I feel weak, depending on food like this. I'm disgusted with myself for making this lunch in the first place and, moreover, for eating it despite all my convictions to the contrary.

Every time someone at work tells me they're proud of me I alternately want to sob or punch them in the face. I don't look "good". I don't look "better". Can't they see that I'm betraying myself to the weakness of 'health'? Why can't they understand the power and beauty of starvation? Why do they look at me like I'm crazy when I say that no, I'm really not happy with how my body is changing? The worst part of it all is that my metabolism is so revved since it's in organ repair mode that I have to eat twice as often and significantly more than normal, healthy people, so all these coworkers who knew I was going in for treatment for my anorexia now look at me eating a meal or large snack every two hours and think I must have been faking. Every time we make eye contact their expressions say, how can you possibly be anorexic if you eat so damn much?

It seems like all I do is grocery shop and eat. And then go back to work to earn more money for more groceries.

I saw Annie last week as I was leaving EDC from the nutritionist's, and she looks awful. My heart broke for her but I was insanely jealous at the same time. Erin and Crystal and I had dinner together at Red Lobster a few nights ago, the first time Erin and I have seen each other since we were in program together... It felt like all we did was watch the other one eat to see who had more and who ate faster and who showed better "self control". I desperately miss all my friends from EDC but what I'd been afraid would happen is exactly what's taking place: our biggest connection to each other was the program and now that we're out the bonds are broken.

Recovery is a bitch.

Is she alive? Or is this just an April Fool's prank...

Why has it been so hard to write? I don't know. Primarily, life lately has been work, work, work, work, AAAAH WORK WORK WORK!!! It's amazing what six weeks out of work will do to your financial stability, even with outside help. Actually, at this moment I'm having a mild freak out because our paychecks just came and they were (combined) a couple hundred less than I was expecting.

How do I begin describing life at present?

I miss the security of program, for one thing. I'd never been able to fathom Munchaussen before spending so much time under the care of others but now the appeal is pretty easy to recognize. If for no other reason than I didn't have to worry about planning, purchasing, and preparing each of my six meals a day the idea of PHP has a somewhat dream-like quality. I've probably said this a thousand times already but I had completely forgotten how damn expensive it is to eat as much as a normal person is supposed to (and then some, in my case). I honestly used to see food as a sort of guilty commodity, purchased only when my basest animal impulses could no longer be ignored. It's still hard to not look at the hundreds of dollars I spend as frivolous expenditures. I'm late on my car payment and will have to be a few days later still because I have no groceries left in the cupboard. One example among many.

Another struggle is that I'm once again facing the feeling of being absolutely bored with eating. I suppose that when one consumes as much as I do on as little a budget as I have it may be an inevitable thing... Or perhaps I'm short on recipes and ideas. (Hint, hint, dear readers! Lolz.) Or, as a third option, maybe I'm just weird. Either way, it's to the point that I open up fridge and cabinet and just stare at it all with distaste despite the hunger I'm feeling again now. My current staples are chicken, rice, potatoes, PBJ, cheese, yogurt, milk, and ritz crackers. Factor those out to six meals a day, every day, and it gets highly repetitive.

Okay, technically I probably shouldn't say six meals. It's three meals, three snacks. However, the snacks to me seem like meals... They've given me a snack list to choose from, and it'll have options like: 1 yogurt, one slice bread, two tblsp peanut butter or two servings fruit, 1 1/2 c. cottage cheese, one serving cereal. These, to me, are more than 'snacks'. When I think 'snack' I think a handful of crackers or a yogurt or a serving of fruit... Not this AND this AND this.

On the happy side of things, I am really working at this thing with an intensity and seriousness previously unseen. Crystal even admitted that I'm surprising her and surpassing the expectations she had for me and EDCD. Not that she was expecting me to fail or whatever, just that she hadn't anticipated I'd really try to get healthy and not just less sick.

Because I am who I am, artsy fartsy crap is a big part of this. We just purchased a dining room table and chairs a couple days ago (yay craigslist, fifty bucks for all!) and Crystal had the idea to turn it into a really recovery-oriented project... Since the dining room table is the main battleground for healing and all that schmaltz, she had the idea to collage over the top of it with encouraging images and words and such. I'd already stated from the get-go that I wanted to make the table all crazy and bohemian and absolutely insane looking but Crystal really gave it a direction.

Haven't started on the table yet but I started work on a couple of chairs yesterday... One I'm just painting and haven't got much direction on yet, but the other I've taken a bunch of my 'sick' jeans and cut them to pieces which I'm wrapping and gluing to the chair. It's pretty freaking awesome, much neater than the haphazard picture it suggests. Very Soho/Greenwich Village/Dupont/Eastern Market/San Fran/etc. I'll post pictures and progress pics as things come along. ^.^

Speaking of sick clothes, the things that fit are falling away slowly but surely. It's getting so that I hate going into my closet to pick something out... Much easier to keep one or two outfits readily accessible to avoid any possibility of pulling something on only to realize it fits like Spandex. I'm holding out for a while as the weather gets warmer, though, both to hopefully help stabilize moolah and wait to purchase clothes that will last me the season instead of a few remaining weeks or months. Mostly I alternate between work uniform and sweatpants.

Despite this, I'm still not gaining the way EDCD wants. I can tell my body is changing and am royally freaked out by it but whenever I go in to meet with the nutritionist she purses her lips a little and asks what I'd be willing to add to my meal plan. I'm not losing, she'll say after the blind weigh-in, but I'm really not gaining, either. Apparently I have the metabolism of a hummingbird.

The nutritionist's comments about my not gaining aren't enough to thwart mirror melt-downs on a regular basis. Any lingering BDD seems magnified now that my body actually is changing. Depending on the moment I'll be in tears because I think I've surpassed the girth of an aircraft carrier or because I see no change and think I'm a failure at recovery and shouldn't be bothering. There appears to be no win. Pulling on too-tight clothes which fit yesterday is not in the least helpful. Similarly, the day I pulled on a pair of jeans and realized they stayed up without a belt now caused one of the worst relapse-y days yet.

Well, I need to go find food for the day. I've yet to put something in... But then again I didn't get up until 1:30. (Restaurant closer schedule.) Blaaaah food. Why is something so banal such a complex, pain in the ass issue? I may never figure that one out.

Love and hope to all y'all. I'll try to be less negligent in the future!

Blather.

Sorry for the lack of posts... I'm at a constant level of baseline panic as the days until inpatient narrow to hours. It's making things really difficult at home, at work, online. My words are all stunted as my fingers freeze in anxiety and... whatever else I'm too freaked out to think to say right now. I'm treating Crystal and my friends horribly, snapping and mouthing off way more than is even usual. I can't concentrate at work for perhaps obvious reasons.

All I can think about is how scared I am to do this, how badly I want to back out, how desperate I am to be healthy. I obsess over every detail of the things I'll miss about my anorexia. This obsession makes me think I 'like' my eating disorder a lot better than I know I do... But there are still many things I'm going to miss about it. It's strange how integral grieving is to recovering from an eating disorder.

That's all I can think to say right now, guys, I'm sorry. I'm sure that once this thing actually starts I'll be so much calmer and better able to function... I know from experience that nine and a half times out of ten the dread is so much more insufferable than the event itself.

To expound upon earlier thoughts...verbosely.

Ex post facto, as is so often the case, I'm thinking yesterday's post may have been made a bit rashly. By which of course I mean that yesterday I was basically freaking the f-k out and somehow had the misfortune of getting my fingers onto a keyboard, thereby spilling a noxious pile of disjointed, jumbled, frenetic words. Contrary to popular belief the best writing is made with a level head, not one stressed and emotionally charged.

My initial shock at the Drs' assessment of my case is still pretty much the same as ever. I still fail to understand how I need inpatient care; to some extent, I'm still questioning whether or not my level of health or illness requires something so extreme as intensive outpatient. Okay, that's a bit of a lie: I know I could do with some outpatient treatment. But inpatient still does seem over the top.

However, since yesterday's phone call with Drs Roberts and ...a woman whose name I forgot... the general consensus among friends and relations seems to be that inpatient care might not be such a bad thing for me.

I'm still trying to wrap my head around this.

For the reasons I listed yesterday, I still believe myself to be in a fairly healthy place. Particularly when I compare myself today to myself two years ago (or even one year ago), today's self looks a world healthier than I was previously. Water and hundred calorie fasts are no longer a routine thing for me. For that matter, I haven't intentionally fasted in quite some time. My periods are regular, my fatigue has lessened; although labs haven't been run for me in well over a year my body feels like everything is working well. When I eat, I don't do well making sure my meals are healthy and ballanced and supplying all necessary nutrition, but neither are they comprised solely of high fiber vegetables and...more vegetables.

My question about what health should look like that proves I'm so far from it still stands. I'm beginning to ask myself if the main reason I think I'm healthy is that I'm comparing myself to a prior, sicker version of myself - not to a normal, healthy standard of existence. Granted, I'm much healthier than I used to be. My life is not in immediate danger from any starvation consequences. But does that mean that I'm to the standard of health that is the goal of recovery? If not, how far away am I really?

Following are my principal objections to the partial hospitalization program:

-FINANCES. Call me a jew if you will, but worries about finances are still the number one concern about this program.
-->Aside from the fact that the program itself will likely cost far more than EIOP, it will be an eleven hour a day, seven day a week commitment. This, simply and unavoidably, will not allow for me to work. Even if I were able to get my work to allow me to come in at 8 each night to help close, that would leave me with a potential for six hours sleep per night. Therapy is hard work in and of itself, even a one or two hour session once a week. Realistically, there is no way I'd be able to go from eleven hours of therapy to four hours of work to six hours of sleep to start over again.
-->Crystal and I work hard to meet the bills each month as it is. She's going to have a much tougher course load this semester, meaning she'll have to work less. If I'm completely out of work (or even on a greatly diminished schedule) there is no way we'd be able to make ends meet. (Although, as Crystal pointed out, our food budget will go down since the center'd be feeding me five times a day. Somehow this seems ironic.)

-Triggers. This may seem silly at first glance, but think about it this way... It's been a long time since I was fully immersed in my disorder, seeking out thin pics, thinking about eating and not eating constantly, obsessing about the possibility of breathing in calories or the calories contained in chapstick.
-->Visually, I'm afraid that being in an inpatient facility would present me with a whole lot of girls who are seriously ill. I'm not to a place yet where this seems unattractive to me - contrarily, it'd definitely make me extremely jealous.
-->Verbally, I know that many girls get some of their best tricks from staying inpatient for a while. I know that this does depend some on 'you get out what you put in', but that doesn't mean there won't be tons of conversation about how to tongue pills or wipe butter off on your slacks or slip food into sleeves/purse/shoes. Even if I'm seriously trying not to pay attention to this, it is probably going to be triggering to be surrounded by it.
-->PHP feels to me like I'd be re-devoting my life to my eating disorder. Crystal says this is stupid and she's probably right, but... Like I said, it's been a long time since I was thinking ED thoughts every second of the day and to jump into such a rigid, complete schedule of treatment feels like I'd be backsliding. Crystal pointed out that it'd be devoting twenty-four hours of my day to recovery thoughts, not anorexic ones, but in my head it doesn't feel that way.

-Perhaps most stupid of all my concerns, I'm terrified to go into the PHP program because I feel like I'd have absolutely no control over...anything. Myself, my time, my recovery. (When I told this to Crystal she shrieked, "EXACTLY!!!" But.. Meh.) I suppose some part of me feels like recovery is a way to teach me self control in a healthy way, and therefore I want to retain control over the recovery process. I feel like I'd be okay with three days a week because then most of my time would still be my own, like I'd have certain time devoted to therapy and the rest of the time devoted to whatever else I felt needed to be done.

Even the times I have been inpatient before, I never relinquished control. Granted, I was in a really worthless facility, but while inpatient I found ways to skip meals, self-injure, avoid any participation in group activities; hell, when I was finally fed up with inpatient I found a way to lie so completely and extensively that I got them to release me long before they should have.

I feel as though, historically speaking, every time I've let go and done as I was told by people who cared about me, it only made things worse. Why should I give up my life to total strangers?

Sigh.

So there's where things stand. I suppose nothing will really be known for certain until I talk to them again and then set up the actual intake exam. I'll be sure to keep you all posted.

All I want for Christmas

The title of course is misleading: the following subject is not the only thing I want for Christmas. In fact, there are quite a few things that I'd love to get for Christmas (not the least of which is financial stability, but that's a whole different kettle of fish). However, this next item is something which I've been thinking about increasingly over the last month or two and am now trying earnestly to obtain.

If you're reading this entry chances are you've read some of those preceeding it as well. This being the assumed case, you've probably caught on to the fact that my eating has not been nearly as good as it could be lately. A big thing I've been noticing is that even though I'm eating at least a meal a day and am trying to at least eat something when I'm hungry, I may be doing the actions but mentally I'm deteriorating again. Distorted body image has been again growing more distorted, obsessive thoughts more obsessive, calorie counting once again almost an unconscious act.

And all that makes it sound like it had ever totally gone away in the first place.

I've never once willingly addressed my eating issues in therapy. This may sound surprising, considering I've been in and out of therapy since I was seventeen, but if you think about all the other issues I've got to deal with (depression, DID, etc) and then take into account that I haven't wanted to talk about my eating... Well, it's been easy enough to steer conversation into other areas that I'd rather deal with. Perhaps that's one fault with the therapy styles so far used with me: it's been way too easy to just change the subject when I don't want to talk about or address something. But now I'm really sick of it.

The therapist I've seen recently (Chris) has next to no experience treating eating disorders. Aside from that, she only sees clients once every other week. Out of all the therapy I've done, the only time that was really intensely helpful was when I saw someone twice a week. Once a week was pretty much just enough to keep me from getting worse, but I didn't see a whole lot of improvement.

All these considerations in mind, I've decided (and have talked this over with my psychiatrist, who agrees) that intensive outpatient would probably be a really good idea for me at this point. After looking into it some, I've found a treatment center in Denver which appears to have a really good program, great treatment team, and should hopefully be able to work with my insurance. It's through the Eating Disorder Center of Denver. (Fitting name?)

The program I'm most interested in is their Extended Intensive Outpatient Program. It's twelve weeks, three nights a week, four hours a night. You work with a nutritionist, psychiatrist, therapists, etc... Dinner is eaten together with group therapy immediately following. There are a lot of the things you'd pretty much expect with an outpatient program... Group, one-on-ones, body image workshops, art therapy, etc. But, from what I've read on the site, it sounds like they've got a really solid program set up.

The center offers three different levels of care: inpatient, EIOP, and a weekly group follow-up thing. I'm sure that I don't need inpatient care (for one, I'm not in a serious enough place medically) and the last sounds like it really wouldn't offer enough. Sooo I've sent an e-mail asking for more information about the program and admissions procedure. Mostly I need to know about the cost and how much my insurance would cover...

...Well, I think that's actually about all I meant to discuss. At least, I can't really think of anything else... I'll keep you informed as I find out more and if/when there's anything else major to report about this. Cross your fingers!

Report from the negligent blogger

It's been difficult to write lately, for a couple reasons.

Primarily, depression's been rendering me verbally and intellectually useless. Actually, for that matter, I've pretty much been worthless for any sort of activity, either... I've been sleeping ten, eleven, twelve hours a night, taking naps when possible, and otherwise lying on the couch all day like some random inanimate object.

The other night I woke in the middle of the night screaming... I tried to explain to Crystal that I felt like all the sorrow of the world was seeping into me, that I could feel all the horrible things that were happening (particularly to children) in every part of the planet and there was nothing I could do to stop them. I still feel this way to some extent, only less...dare I say, less narcissistically? I know that there is no possible way I can beging to understand all the suffering in all the world. There are a ton of things I've never experienced or seen or heard, and hope not to. But still... What I do know is enough to make me feel miserable.

My eating has gone to shit lately, the worst part of which being that I have really, truly, honestly been trying so, so hard. The problem is that every bite now takes an effort the likes of which I've not experienced in several years. I chew and chew not because I'm counting but because all my muscles feel exhausted and my throat refuses to accept the food unless it's down to almost nothingness. If anything, all this battling to eat makes it feel as though I've been eating significantly more than usual, despite clear evidence to the contrary. A couple people are pressuring me to go to the doctor, if for no other reason than to prove to me that my weight is getting dangerous again. (I haven't owned a scale in about ten months, haven't been on one in a month and a half.)

It's so hard to write about this subject honestly and yet withhold as many triggers as I can. Ugh.

I'm seriously left trying to understand where my eating has gone so wrong as to cause this weight loss. I guess it's hard to notice such things when weight loss doesn't immediately trigger a warning light for me... At first it feels like a nice reprieve, becoming something comfortable and easily ignored before it becomes a serious concern. I could stop worrying about how I'd afford new clothes when I outgrew the ones I've worn for years. Worry less about affording food. Continue for hours and hours at work without becoming distracted by hunger.

Starvation habits are just so damned familiar to me that even when I'm trying to eat well and take care of my body, it is beyond simple to slip back into them without even realizing. I guess that's what it boils down to.

Returning to restricting habits has, I suppose, been more of a comfort and an anxiety alleviant than an active fear of food/weight/body or a conscious war against it. Toss in the long hours at work, financial concerns, and stress over the secondary issue I'm about to bring up... And it would appear that the result is me, quietly disappearing.

To abruptly transition... A huge factor in my recent stress levels has been a little kid called Danny Jr.

This four year old is Crystal's half brother, who lives relatively close to us with Crystal's dad and stepmom. He is freaking adorable, super sweet, loving, silly, intelligent, creative, curious, imaginative, and generally awesome. He's also been subject to a serious amount of neglect over his lifetime and, increasingly, physical abuse. (God, I feel like some sponsor-a-child ad.)

Jr's dad, D., has been a severe alcoholic since (if I remember correctly) he was about thirteen. He was abandoned at a young age and taken in to a foster family who housed kids for the government money; all in all two foster parents and five foster kids living in a trailer park. I've heard stories of how D.'s 'parents' would regularly dose him and his siblings with Nyquil when they wouldn't quiet down fast enough. One of D's siblings is currently 19 and has three children. Another is a cocaine addict. The others I don't know about entirely... D's foster parents still live in Illinois, although his mother is close to her end now from a wide variety of health issues, many of which have been brought on by negligence in personal care (i.e. extreme obesity, diabetes, lung problems, cirrhosis of the liver, etc).

Jr's mom, S., also abuses alcohol. I don't know very much about her beyond that she dropped out of school sometime around or before highschool, ran away at some point, and has been surviving by waitressing at Denny's and filling odd jobs for years.

Currently, D., S., and Jr all live in the back room of a skeevy dog kennel and grooming shop right off the highway. It's one of those run-down rows of brick buildings, glass windows held together with tape, iron bars, parking lot paved maybe twenty years ago, only ever frequented by people who've been going there for twenty years. Also in the lot are a liquor store, a nail salon, and a sign for an architectural firm filling a dusty, empty window.

When you walk into the front door (which I was glad to see finally got its glass replaced; every time I've been there before it was splintered like a brick had been thrown against it) you're first accosted by the noise of the dogs. I've never been there without seeing at least a half dozen of them.

A split second after the noise comes the smell... The dogs all run loose over the rippled linoleum, shitting and pissing as god wills it. One wall of the kennel is floor to ceiling dog crates in a sort of wood and steel frame, a few lucky crates lined with pillows. (There is a hand-printed sign encouraging patrons to donate pillows for the dogs to use... The few that have been given are a motley collection of worn out throw pillows and lurid couch cushions.) Even the stainless steel grooming tables are encrusted with dried out filth, gradually flaking off to join the rest of the mess on the floor or settle beneath curls of torn linoleum. It's hard to determine what color the floor is supposed to be... Perhaps needless to say, it's a grimy shade of yellow-brown, accented by rugs in each corner resultant from dozens of doggy haircuts.

Jr isn't really allowed into the shop, though. The owner, B, understood that the conditions of hiring D and S to work there meant that he'd give them room and board and allow Jr to live there as well, but he wants him neither seen nor heard. Jr pretty much stays in the back room unless B is out, the shop is closed, or someone comes to see him. They get paid now and then, under the table, a couple bucks in cash so that they're off the books because D owes so much money in back child support to two ex-wives and four ex-children.

The other day, in explaining how she defended their home to a social worker who recently visited, S described their home as being "just like a studio apartment". When Crystal and I lived in a crappy Washington DC studio, it was a lot bigger than the place the three of them live. Additionally, it had a kitchen. And a bathroom. With a shower and bathtub. This place has none of the above, except for a small toilet room and the shower heads used for grooming the dogs. D and S have a small, electric stove which rests on a table in their room, making up the kitchen. When we went to visit for Christmas this stove was actually out on one of the grooming tables in the shop to allow more room for cooking.

I'm not afraid of filth, let me make that clear. Normally, smells and mess and years of accumulated dust won't phase me. Bother me, yes, some, but I can deal. I've had many friends and several relatives over the years whose houses have been several miles below what you might come across in Home and Garden. My grandma smoked copious numbers of cigarettes and probably hadn't cleaned her house in a good forty years despite generations of labrador retrievers and all that smoke and the usual dirt of living. I'm relatively accustomed to uncomfortably dirty environments. B's shop really, really bothers me. It is truly hard to stay there more than a minute. When we go to get Jr I try to stay in the car if and when at all possible.

When you enter the family's room, you first notice the oversized flatscreen TV in the corner. It's always on. You see shelves with a few food stuffs and the range stove I described earlier, along with a few Broncos memorabilia and a dart board. You see discarded wrappers and crumbs of varying sizes and colors littering the 'kitchen'. To the left is a double bed which D and S share. In the middle is a faded floral couch which looks either to have come with the place or been dragged in off the side of the highway. The couch is the focal point of the place, the center of activity, the throne for the sedentary rulers. It typically is adorned with over-filled ashtrays and sour, empty beer cans. To the far right is a toddler mattress on the floor for Jr. The kennel dogs come and go.

I don't doubt that D and S love Jr. My quarrel is that love is NOT enough. They DO NOT know how to treat or care for or raise a child. Whenever we're over there, D and S try to chat with Crystal and I while yelling at Jr to be quiet and go sit on his bed. He's learned the art of crying in silence.

Jr adored me from very early on... My guess is that I was one of the only people he's ever known who got down on his level and talked with him seriously about whatever he wanted to - even if that meant a two hour discussion/game of what if your eyeball fell out and you had to look for it on the floor and put it back in. He's a four year old, and beyond that he's a very active little boy, so when he tries to play rough with me I don't mind it. He's not trying to hurt me, anyway... When he throws a little punch it's to see me groan and throw myself back in an exaggerated parody of defeat. When D or S see this behavior, though, they scream at him to not play rough with girls and to go to his bed for time out. It doesn't matter that I explain it's my fault, I encouraged the game.

As Jr's gotten older, it seems that D and S have found him increasingly difficult to deal with. He went from baby to mobile toddler to opinionated, rapid, excitable little boy. I don't think they know what to do with him, don't know how to respond when he doesn't behave calmly and quietly like an adult. Over the last few months, spankings have progressed to beatings, sometimes and sometimes not alcohol inspired. He always has new bruises on his head and arms when we go to pick him up, which he explains with shrugs and avoided glances. One recent beating sent him to the hospital.

Connected to the fact that they don't know what to do with him anymore, D has now announced that he plans on shuttling Jr off to live with his foster parents in Illinois. (Do you remember these foster parents? If not, please see the above description.) Initially he said the family would go live in Illinois... Now the plan is to find a car, make the drive up, dump Jr and leave. In some twisted, morbidly ironic twist of fate, living with the foster grandparents might actually be WORSE than the environment he's in now.

Crystal and I have been trying to take him for a day or two frequently over the last few weeks. It's never much... Just take him to a park or let him play with our cats or read some stories or play some games. Just socialize with him. Love him. Whenever we have to take him back, he doesn't tantrum or cry but becomes sullen, obviously upset, distressed, anxious, starts telling wilder and wilder lies about why he can't go back. Something which upsets me in a seriously visceral way is that he doesn't even call it going home... He just says over and over not to take him back to B's. Last week he said, "I don't want to go back because mommy and daddy don't love me anymore, and so I don't love them neither."

So now, the source of my distress. We love this little boy. He's tied to Crystal by blood and me by marriage, albeit future and pending on legality. It's bad enough to watch his present situation deteriorate, but the thought of him being sucked into that trailer home in Illinois is worse. Right now, Crystal and I are very seriously contemplating the long, arduous, emotionally wrenching, financially draining, exhausting concept of a custody battle for Danny Jr.

For many reasons, Crystal's and my home would really be the only readily available place to take him in which could care for him and give him the love and nurturing he needs and deserves. Also for many reasons, I'm scared shitless. Crystal and I are still trying to get financially stable, just the two of us; what the hell would we do with a four year old? Even with government aid we're looking at a seriously low socio-economic level for the forseeable future. And besides, I'm only twenty-one years old. Crystal is only nineteen. Are we prepared to raise a child? Maybe. But beyond that, are we prepared to fight for, adopt, and raise an emotionally damaged four year old?

We keep going back and forth and up and down and inside out and sideways over the same questions and the same answers. Maybe, I don't know, probably not, we could try, what other options do we have. The truth is, both of us really do want to raise Danny. We love him and know him enough to see so much potential, so much worth fighting for and nurturing. We would love nothing better than to be the ones to give him the care and love he needs.

But how the hell can we do this???

And now we return full-circle, as life is wont to do, to the subject of my not eating. Maybe it's got to do with the ENORMOUS FREAKING ULCERS that all this stress is causing. (Okay, so maybe they're figurative ulcers. Mental ulcers?) When I eat it's not even just eating dollar bills anymore... It's eating dollar bills that should be going to help this little kid. ....God, yes, I know I'm talking crazy. I'm good at that. It's a talent, perhaps a hobby.

Does anyone have advice to chip in on this one? Please, this is an open request and plea. Send me a website, tell me an anecdote, give me some phone numbers, whatever you've got. Even just an, 'I'm thinking of you.' Something tells me I'm in over my head on this one.

Reflections on self-injury

Sigh... After an eight AM meeting, I opened this morning... And now, coming on briefly after I got off, Crystal closes tonight. So no baby all day. Makes me sad.

Feelings of instability have increased markedly lately. My feelings about eating (if not quite my habits themselves) have begun to improve, but the depression and anxiety hang around as they always have. It's been about four or five months since I last cut and the urges are strong again. They never really go away.

I don't talk about my cutting much. I guess that it's something which feels like it's always been with me and still feels more like a friend and companion than a bad coping mechanism or dangerous, destructive habit. It's one of those things which therapy has yet to talk me out of. So far most, if not all, of my previous therapists have wanted me to go to an inpatient facility to tackle the issue.

I've always argued around aggressive treatment/inpatient as primarily a matter of affordability (after all, right now I can't even afford therapy in and of itself) and secondarily as a Not Really Major Issue. Somehow the infrequency of my indulgence makes me think it's less of a problem. (Isn't it?) Things have never been so bad that I'd cut multiple times a day (well, not usually) and as a general course have been once every few weeks at most. Over the past year and a half or so, once every few months. That's not a big deal. Right?

Of course... There is the porning. Like I used to food-porn with anorexia, I cut-porn now. Most recently, the scenes in Harry Potter and the Order of the Phoenix with Professor Umbridge's wicked little quill have provided both a trigger and feelings of satisfaction, at least to some degree. The internet teems with triggers and 'porn'. The imagination fills in where my physical actions continue to refrain. While physically I may not have cut for months, I guess you could say I'm a total porn addict. A few times a day, maybe. Constant daydreaming, sometimes.

Here's the thing, though. Technically, I'm not harming anyone by this. Beyond that, I'm not sure how to stop it. Beyond that, I'm definitely not sure I WANT to stop.

I never 'gave up' cutting as a personal resolution or a decision to recover, heal, overcome. I never have wanted to stop. (This was another reason I argued against inpatient: most places, unless you're a serious medical harm to yourself/others, require that you sign a contract certifying you're entering the program of your own initiative and with a strong desire to recover.) I suppose it's a sign that my thoughts in this area are still ruefully unhealthy or something, but no one's ever managed to convince me either of how cutting hurts me or how I'd be better off without it.

The reasons I've physically stopped are simple: other people. Namely, Crystal, my little brother, and total strangers who see my body and look horrified. Were I completely alone and able to ignore others better, I'd probably continue to self-injure on a weekly or daily basis.

I don't know how to deal with the sense of loss. I don't know how to cope with the feelings of self-hatred, anxiety, loneliness, emptiness, self-loathing, inadequacy, helplessness, mania - even just boredom. These are all some of the things which drive me to self-injury, physical or imaginary. When I'm not self-injuring regularly I feel a loss of identity and a lack of completion. Something is MISSING. I grieve for it in a way usually reserved for close loved ones. In the same way that I get confused about who I am if not an anorectic, I don't know who I am if not a cutter. (God, how BDSM does that sound?)

There's a hotline that I've often been referred to and never called - 1-800-DONT-CUT. It's supposed to be really good; I've read much of the book written by the people who started the line and they actually run the only inpatient program I've so much as considered for self-injury. (The reason I've never called is that when I'm to the point that I want to actually self-harm, I don't want anyone to talk me out of it, deter me, or break my mood.) Lately I've been wanting to call them just to talk about this in lieu of a therapist: how do I face the sense of emptiness that comes without cutting?

I wonder a lot if this is a normal feeling. More and more the Powers That Be are looking down on calling self-injury an addiction, opting instead for a more learned behavior, benefits/rewards approach, but I still feel like 'addiction' may be the best term. After all, don't recovering alcoholics, smokers, drug addicts reference this feeling of confusion, lack of direction, etc? (Hell, isn't that part of what AA and its higher power teaching is about? Just redirect that passion!) I don't know. It's one of those areas that I'm left aware both of my personal lack of knowledge and the communal lack of understanding in this area.

Therapists have given me dozens of worksheets and thought pattern charts and you-name-its to fill in, to understand the thoughts and emotions that drive my urge to self-injure. These charts often backfire and, instead of helping me to break it down and understand my feelings, lead me to think that I'm either too damn crazy for a chart or just plain have a glitch in the system. I've got so many filled out charts with reasons ranging from the classic 'anger at' whomever to things the docs can't understand (or accept as truthful) like boredom, feeling 'too' happy, feeling distractible, and missing someone.

Several docs have been adamant that all my urges are simple: anger turned inward. ...even though anger is rarely a motivating feeling.

Several tell me it's frustrated sexual energy, or sexual fear, or sexual something. (Freud is aliiiive!)

Others still insist I just want attention. (After all, I gave up a long time ago on trying to hide all the damn scars where most cutters will still opt for long sleeves no matter the weather.)

In the end, I often have to wonder if anyone truly has a solid understanding of self-injury, its triggers and motivators. Maybe that's why it's so hard to want to give up: if no one can help me understand what it is and how it works in the first place, how can they convince me it's an altogether 'bad' thing?

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In other news, August 1st my new insurance kicks in. I stopped seeing Shelley about a month ago and have been (again) out of therapy since then. I've been unmedicated since February due to the whole insurance cut-off fiasco. All improvement, stagnation, or backsliding has been the result of lack of any sort of treatment whatsoever beyond the self-nurture I've learned to give myself.

I have the number for another therapist with whom I'm supposed to call and set up an intake... She has a lot of extensive, varied experience and works with an organization which seems to have really good policies toward medication... So I guess that once August rolls around we'll see what's what with that.

The allure of the crazy

We're getting down to the wire on moving day. Eek! Packing, moving, planning for moving, and of course working around moving are all busily taking up my time and thoughts. I've taken several days off this week, for which I feel rather guilty, but at the same time recognize as a necessity. I've needed the time to pack and get done other things which I've been putting off (for instance, going to get our car registered. Which I'm supposed to be doing now...).

My mental health status or lackthereof hasn't been helping in this whole process. Possibly the difficulties are being caused by the extreme stress of relocating coupled with the stress of Crystal narrowing things down in the job hunt. More probably it's related to that and other life factors like a lack of badly needed medication, unstable therapy situation, and family stressors. I've been trying to spend as much time as possible outside since even though I was never diagnosed as Seasonal Affective and don't really believe I am, I HAVE noticed an undeniable improvement in my mood and mentality when I spend lots of time in the sun. (Similarly, my moods start to decline most sharply when the sun goes down or a storm comes in.) Nonetheless, things have still sucked a lot.

The breakdown I mentioned in the last entry has been the worst of the 'episodes', at least. I also choose not to write about it, just leave it at 'bad'... It involved me raging in a way quite uncharacteristic and taking out a lot of the distressed agression on those closest to me and most undeserving. Crystal and I agreed that the file is going to be sealed and I think that it's absolutely the best decision. Or maybe I just want to save face.

Every night has held with it some mini bout of shoe-staring. Last night I about lost it because Crystal and I were in bed snuggling, the covers got messed up, and she wouldn't let me fix them (as a way to try to help me through some of the more dominant compulsions I face). Instead of achieving the hoped for result of me realizing that rumpled covers really were not that big a deal and would not ruin my life it sent me into some mild hysterics. More than once Crystal's had to drive back to work after dropping me off because I couldn't function on my break because of anxiety and depression.

My thoughts have lately focused a good bit on trying to understand the somehow 'romantic' lure of mental illness. Why my brain reasons that crazy people are more interesting, more likeable than normals even though I've got personal and objective reason to contradict that... Mental illness is boring. Shoe staring is boring. Breakdowns and neurotic fits are frustrating and hard to deal with; they don't make you a more interesting, alluring, mysterious person. They make those near you pull their hair out and wish to be less in love so they could just walk away and leave you to sort it out on your own. Starvation turns you into something ugly and inhuman, not enviable and elegant. I've never been able to understand why the starved brain thinks its body graceful when it's anything but. What's the appeal of bruised everything and fainting spells? What is it about mental illness that I'm so afraid to lose?

There's a big difference between eccentricities and neuroses. Eccentric, yes, maybe can be alluring. But hell, I've got eccentric in lethally excessive doses. What I've got is more along the wide-eyed, silent, slack-jawed, back-away-slowly-from-the-crazy-lady lines. I've met eccentric people, I've met people way more unballanced than I with bents toward the psychotic and hallucinatory. I fall somewhere in the middle, I guess, possibly a little closer toward the extreme end. Doesn't mean I haven't still had awful days, the days where you don't shower for weeks on end, can't remember how to dress yourself properly, can't manage the bare minimum required for human communication. (You know, the days where people stare because you break down crying when trying to order your Starbucks. That sort of thing.) ...Or, as evidenced by this post, can't manage the linear thought necessary for blogging.

Why does this somehow feel desirable to me? When in the midst of it, it's hell. I know this. I can't trust my mind to be logical, I can't trust my senses to give me honest assessments instead of deceptions. And yet, somehow, there's still some element that feels like a game. Like it's not an illness to be cured but a...something, to be conquered and tamed and used. This crazyness, for all its torture and isolation and inescapability, is more familiar to me than anything close to 'health' and 'normalcy'.

I've somehow got these wild ideas that 'health' will turn my crazy manic thinking sprees into a brown and grey Kamazots world. That I'll lose the multi-colored Dr Seuss-ness to utilitarianism. That to be able to trust what my senses tell me about the world will mean that I get really boring reviews. It's that fear that medication will cause me to be numbed instead of better.

NONE OF THIS MAKES ANY SENSE.

I've got enough logic left to know this. I know that when I'm healthier my emotions are slightly more tamed, I'm able to have friends, communicate with people, hold a job successfully, and even work toward a better place in therapy instead of just struggling with damage control. I know that medication does not numb me out but does make things like rumpled covers less catastrophic, decisions like which movie to rent manageable and not life-altering. Medication makes my laugh easier and my tears have reason before flowing.

So then of course, the big question is: if I know all this, why am I still so afraid?

Incurable cases?

It Gets Better - Jenni Schaeffer

This is my personal inspiration for today, which I thought I'd share with all of you. After actively fighting this disorder for almost a year and a half (as opposed to passively, which constitutes the latter half of my life) I often feel like I should be well now. I should be eating regularly, enjoying it, maintaining or gaining weight --- especially not losing and not caring, or finding vicious celebrity gossip 'thinspiring'.

I do miss being under a hundred. I miss being dizzy all day. I miss the bruises all along every ill-padded bone. I miss regular self-injury. My eating disorder has been nothing but abusive, spiteful, manipulative, selfish, ruinous, and yet perhaps I will always miss it.

Lately, you've been watching me relapse to some extent. Perhaps it's not been much of an active relapse, but I've still not been doing a whole lot to fight it too hard. The past few weeks have been the sort wherein eating somehow feels like an exhaustive, distasteful chore whose purpose is obscure and value inconclusive.

Today I'm trying to reinforce the understanding that it is okay to relapse. Probably this is not the statement most professionals would want me to be saying, but be realistic here. Relapse will happen. I'm not saying it is okay to embrace it. I'm saying it's okay for it to happen. It is okay to accept bad days along with good.

What's not okay is to welcome it, engage with it, actively pursue it and see how bad it can get. Today I'm trying to look at my life and say, all right. I've been having some bad times lately. My eating has not been what it should be and my attempts to thwart it haven't been up to par. Now that I understand this, I can accept it as something which happens from time to time instead of beating myself up about it for being the worst recoverer ever. I can acknowledge the bad and try to pick myself up again instead of saying, crap, I failed again, I must just not be cut out for this health thing. I can let the relapse be what it is and then let it go.

One thing Jenni wrote in her article in particular stood out to me: her realization that the belief she held about being too ill to recover was false. I remember many, many journal entries along those lines and can now realize that even in the midst of a bad spell I'm still able to see how far I've come toward health and that I'm still moving toward it even despite a two steps forward one back progression.

I still often feel that this disorder may always be with me. But I know now that it does not and will not always control me. I AM NOT TOO SICK TO GET BETTER!!! I was not the sickest, I was not the least sick, but I AM getting better in spite of everything!

Be encouraged!!! You probably feel like a hopeless case. Like no matter how many people say they understand, they really, truly don't. They can't see inside you and realize what a horrible, twisted, incurable creature you are. Like I'm full of sh-t for saying that I know what you're feeling. I won't claim to be all-knowing or all-answer-ful. But I will say that I have felt that before. Sometimes I've felt that my core evil was so warped and disgusting and pervasive as to be a tangible force. I've felt that it defined every part of my being so inextricably that all I would ever be able to be was worthless.

So not true.

Please, please don't listen to the lies this disorder tells you. It tells you you are worthless because it makes you easier to control. Would a person who highly valued and loved herself be as easily inclined to destroy herself as one who thought she were worthless? It's all a power scheme. A vicious and effective one, but only a scheme.

It is possible to break from this disorder and grasp the health that seems so impossible.