Showing posts with label anorexic consequences. Show all posts
Showing posts with label anorexic consequences. Show all posts

08 January, 2008

Does... not... compute...

As I mentioned recently, I've gotten to a place that I'm seriously pursuing recovery. For myself, no one else, I want to be healthy and experience what life healthy looks like. To this end, I did some research into area treatment centers and finally contacted the Eating Disorders Center at Denver, since its programs seemed to offer best what I was looking for. Yesterday, I got my first call back from them. I spoke with one of the doctors over the phone, doing a basic clinical assessment thingy, then discussing the extended intensive outpatient program they offer.

My biggest concern was that they'd say I was too healthy for the program and should probably look into just weekly outpatient therapy or perhaps some of the group programs. After all, I've been maintaining pretty well, I eat on a daily basis, I don't really count calories at all anymore, and on and on and on. From my perspective (and historically speaking, given my case), I feel like I'm pretty much recovered. I just need help to get there all the way.

About an hour ago I had another call from them, this time a conference call between the assessment clinician and the EIOP program head. My initial response was a sinking, oh crap, feeling. They said they'd been discussing my case and given what Dr. Roberts and I had talked about yesterday, they didn't feel the EIOP program is going to be appropriate for me. Damnit. I knew that was going to happen. Crap.

What I didn't in a thousand years see coming was that they said the EIOP won't be enough for me.

They think I need to do the partial hospitalization program. Sdsogiherh?? Geh?? The program is seven days a week, eleven hours a day. I'm not sure how many weeks long it is.

How the hell do they think I need that level of care? Crystal agrees. Wtf?? I can't even get this to enter my schema. I really, honestly, truly, cannot understand what they are saying. I was sure I'd get turned away for being too healthy, not get told I needed partial inpatient!

Reasons I think I'm healthy:
-I've got a good fifteen, twenty pounds on my low weight. I've been maintaining this pretty well for the last year or so.
-I eat every day, usually twice, sometimes with a snack. When I'm hungry, I detect that, respond to it, and don't ignore it.
-I drink regular soda now. I drink 2% milk. I even eat red meat again! I eat butter, cheese, pasta, all those horrible horrible evils I wouldn't allow to enter my lips.
-I've even eaten McDonald's more than once in the past year. For the longest time I wouldn't even set foot on the premises of a McD's for fear that I'd somehow breathe in the calories. And now I've eaten it! Willingly!
-I eat Chipotle. On a regular basis. (And I always get extra sour cream on my burrito, and I like it!)
-I don't visit pro-ana trigger sites nearly as frequently as I used to. I'm no longer a member of the ana elitist comms. I'm not a member of any pro-ED comms, for that matter.
-Did I mention I eat pasta? And cheesecake? And butter? And that I can enjoy them?
-And that I don't calorie count? (Usually..)

What is health supposed to look like that I'm so far from it? I haven't been amennhorhaeic in a good year and a half, and even then my menses were only irregular, even when I was clinically emaciated. I don't exercise obsessively, I don't purge, I don't abuse laxatives anymore, I eat salad dressing... I cannot understand this. I seriously cannot get it to enter my head. I can't wrap my mind around it.

Am I really still so crazy?

Aside from that whole level of cognitive dissonance, let's just stop to look at some logistics right now.

HOW THE HELL AM I GOING TO AFFORD A PARTIAL HOSPITALIZATION PROGRAM.

I've talked to my family and my dad has said he will help pay for the EIOP, which is incredible and the only way I'd be able to afford to do that in the first place. And with that, I'd still be working full-time so that I could afford rent and loans and bills and crap. I wouldn't be able to work if I was in the hospital eleven hours a day! And I wouldn't be able to afford to live if I wasn't working!

I'm really in an effing pickle here, bitches. First, do I really need this? And second, if I do, how the hell can I pull it off?!?

31 May, 2007

Incurable cases?

It Gets Better - Jenni Schaeffer

This is my personal inspiration for today, which I thought I'd share with all of you. After actively fighting this disorder for almost a year and a half (as opposed to passively, which constitutes the latter half of my life) I often feel like I should be well now. I should be eating regularly, enjoying it, maintaining or gaining weight --- especially not losing and not caring, or finding vicious celebrity gossip 'thinspiring'.

I do miss being under a hundred. I miss being dizzy all day. I miss the bruises all along every ill-padded bone. I miss regular self-injury. My eating disorder has been nothing but abusive, spiteful, manipulative, selfish, ruinous, and yet perhaps I will always miss it.

Lately, you've been watching me relapse to some extent. Perhaps it's not been much of an active relapse, but I've still not been doing a whole lot to fight it too hard. The past few weeks have been the sort wherein eating somehow feels like an exhaustive, distasteful chore whose purpose is obscure and value inconclusive.

Today I'm trying to reinforce the understanding that it is okay to relapse. Probably this is not the statement most professionals would want me to be saying, but be realistic here. Relapse will happen. I'm not saying it is okay to embrace it. I'm saying it's okay for it to happen. It is okay to accept bad days along with good.

What's not okay is to welcome it, engage with it, actively pursue it and see how bad it can get. Today I'm trying to look at my life and say, all right. I've been having some bad times lately. My eating has not been what it should be and my attempts to thwart it haven't been up to par. Now that I understand this, I can accept it as something which happens from time to time instead of beating myself up about it for being the worst recoverer ever. I can acknowledge the bad and try to pick myself up again instead of saying, crap, I failed again, I must just not be cut out for this health thing. I can let the relapse be what it is and then let it go.

One thing Jenni wrote in her article in particular stood out to me: her realization that the belief she held about being too ill to recover was false. I remember many, many journal entries along those lines and can now realize that even in the midst of a bad spell I'm still able to see how far I've come toward health and that I'm still moving toward it even despite a two steps forward one back progression.

I still often feel that this disorder may always be with me. But I know now that it does not and will not always control me. I AM NOT TOO SICK TO GET BETTER!!! I was not the sickest, I was not the least sick, but I AM getting better in spite of everything!

Be encouraged!!! You probably feel like a hopeless case. Like no matter how many people say they understand, they really, truly don't. They can't see inside you and realize what a horrible, twisted, incurable creature you are. Like I'm full of sh-t for saying that I know what you're feeling. I won't claim to be all-knowing or all-answer-ful. But I will say that I have felt that before. Sometimes I've felt that my core evil was so warped and disgusting and pervasive as to be a tangible force. I've felt that it defined every part of my being so inextricably that all I would ever be able to be was worthless.

So not true.

Please, please don't listen to the lies this disorder tells you. It tells you you are worthless because it makes you easier to control. Would a person who highly valued and loved herself be as easily inclined to destroy herself as one who thought she were worthless? It's all a power scheme. A vicious and effective one, but only a scheme.

It is possible to break from this disorder and grasp the health that seems so impossible.

07 May, 2007

Confrontational feeding

It's always hard to tell where you draw the line between wanting sensitivity and understanding from others and trying to recognize where you yourself are perhaps being too touchy. All through childhood my dad was quite insistent that I took myself 'way too seriously' and needed to learn to laugh at myself... Personally, I often felt that was a bit of a harsh judgment, but that's neither here nor there.

In any case, on this particular occasion, I've got little to no doubt that the comment in question was out of line.

I've been through more than a couple managerial transitions in my time spent working the restaurant industry. I've had maybeee....two? general managers that I've liked. Yes, two, that's the right number. I like this particular, current general manager least of all so far. He's very heavy with the sarcasm when displeased, and not afraid to bitch people out publicly either. He's a good six foot something, all football player looking, a bit snaggle-toothed and overall quite intimidating. Quite the asshole.

On Sunday mornings he gets extremely stressed out. He always locks himself in as the expediter to make sure ticket times aren't running too long and the foods all get out correctly and whatnot, since Sunday brunch has a slightly different menu and can be stressful for the kitchen. Because of this, Sunday mornings he institutes a unique rule which I have the most impossible time remembering: employees may not make any modifications to their meals.

As I, granted, frequently do, I forgot about this rule yesterday when ringing in my food before going on break. I remembered almost immediately after sending in the order....but unfortunately, once done is done.

When I went to get my food from the line and take it to the back for my break, the GM was up in his usual spot and decided to make a scene, or maybe just an example, of it. As mentioned before he's a big man and has a big voice to go with it, so when he raises his voice at all it's definitely audible.

"Tina. Hey, Tina? Next time would you do me a favor and just not eat?"

...

That very morning over coffee with Crystal I talked about the fact that I've been really struggling with body image the last couple weeks. (Wow, I forgot to write this anecdote... When I went to the doctor last Saturday I realized quickly the part I'd forgotten to put in my medical istory: anorexia. The reason I realized this was that when they took me into the back the first thing they did was to put me on a scale. Fully clothed and facing forward. At this point, I realized that, fully clothed, wearing shoes, and having just eaten, I was a good ten pounds less than I was when last weighed, without all those other factors. Unfortunately, to the eating disordered mind there is nothing like finding you weigh less than you thought to trigger the desire to lose more.)

The whole affair triggered a panic attack and rid me of any desire to eat. I guess it was evidence of how far I've come, though, that I still did eat my lunch.

12 April, 2007

A more thought-out continuation

Well, I don't know how to directly link MP3s into this thing, nor can I find an actual music video for this song, but I want to put it in so...here is. It's just the song with a boring backdrop that never changes, but the point is that the song is there and in good quality (unlike most of the videos, which are cell phone video recordings of live performances).



The song is called 'Swing Life Away' and always manages to make me feel a little better. Granted, I'm still feeling quite shitty about the money situation, but despite how romanticized the song is it's still a reminder that Crystal and I aren't the only people in a really bad way who nevertheless manage to get by.

In fact, it got me thinking about pretty much all my close friends who've ever been eating disordered or major depressive or just plain crazy... One of the biggest consequences that never gets mentioned publicly is DEBT. All of us seem to be in major sort of debt. More than half have been forced to drop out of college. We've all got incredible hospital bills looming over us, nutritionists, therapists, psychiatrists, medications, ER bills and surgeries.

Continuing briefly on that last comment: yes, surgeries. I have no doubt that, in some way, my poor physical health contributed to me needing my shoulder surgery when I did. I've had joint problems for some time which I have no doubt are resultant from malnutrition taking a toll. Many other girls have nasogastric tubes to pay for, surgery to correct gastroparesis or perforated esophaguses. Surgery and eating disorders have a pretty damn high correlation from what I've seen. I mean, lets be honest.

Eating disorders don't just f-k with your head: they destroy your health. They suppress your immune system leading to a higher instance of other illnesses (i.e. chronic mononucleosis, in my case), brittle bones and osteoporosis, weakened muscular system, damaged tendons and ligaments, liver and kidney problems, tooth decay, on and on. These are all the quiet consequences no one notices until the systems start to break down, and then don't realize that they are, in fact, due to the eating disorder.

Sooo... I'm in a lot of debt. But I'm also not the only one. Maybe I just complain more, and more publicly? Who knows... Today I'm calling AES and the independent lender and working out payment plans, as well as sending off the first small check to start repaying my hospital bill.

I keep trying to remind myself that yes, I've got a lot of people to repay, but I'm only twenty years old. (Did you know that?) I may feel like I'm fifty, but in reality my parents aren't even quite that old. I've got a long time left, hopefully, and if by some freak accident I did kick the bucket then I wouldnt' have to worry about those debts anymore, anyway. Even if it took me ten years to repay these I'd be free by the time I'm thirty.

That's really not so bad in the grand scheme of things...

Right?

29 March, 2007

...insert witty title here...

I suppose I'm so obsessed with watching Frida because it in many ways feels like I'm watching my own life played out. Except that she's a lot older, the pain is more physical than mental, her anger is more outwardly directed than inward, and she had about five million times the talent I have. If I could have that much potential for the creation of beauty... I mean, damn. I'm more or less all right with words but my fingers lack any skill with a brush or pen. Sigh.

Force-feeding myself is getting a little easier. I can't say the depression is easing or the appetite increasing but I'm adapting to it a bit more readily, I suppose, and making sure to feed myself is gradually becoming a habit. It's so ridiculous, after all these years fighting my hunger, denying it's there, refusing to acknowledge it, I can barely recognize it at all. I can finally see the face of Hunger but can't recognize it.

Something I've noticed here is that Colorado seems to have an enormously disproportionate number of underweight women. Perhaps it's that Maryland is one of the 'fattest states' in the nation (which is true) and I'm accustomed to being The Skinny Freak, but it is truly heartbreaking to see so many women around me starving. What once would be a serious trigger is now something of a reverse; I get so upset witnessing their suffering that I want to prove I can overcome it. Even from a purely visual standpoint, the constant bombardment with fashionable emaciation repulses me as I can see how unappealing it is. The lanugo, the bones and bruises, the skin sagging and prematurely aged. I want to be sexy. I want my hands to stop shaking, freezing all the time, looking like they belong to someone twice my age.

I can't count how many times a day I'll witness girls bone-checking while staring at the dessert case, chewing gum like their lives depend on it, clearly terrified of so many calories surrounding them. How many times I'm asked for the nutrition facts in a certain dessert. (I know most of them but, thank god, we are honestly not supposed to tell.) More than once, women with bloodshot eyes and sores around their mouths have ordered cheesecake to go and I've wanted more than anything to refuse it to them. Or at the least, beg them not to do with it what I'm sure will be done. I'm usually trying to hide that I'm crying as I toss forks and napkins into the bags.

If I could afford enough medication to numb myself out, I'd go for it. Beyond depression these days, it's like I just can't handle the heartbreak of the world. Numbing me out might be more like ballancing me at this point. Everything sets me off. I have to stop myself, constantly, from saying something to all these girls. (As if I have any idea what to say, anyway. Please eat? I know you're hurting but it's not worth it? Are there ANY right words for a situation like that?)

At the same time, it's so impossible to fight against the non-hunger. Why force myself to eat when I'm not hungry? Shouldn't I be grateful? Shouldn't I feel lucky? It's to the point that I'll go all day and realize sometime around bedtime that I had nothing, or a banana, or a piece of bread. The old bruises are showing up along my spine and back hipbones. I'd gotten used to having warm hands and feet but so much for that. My body is again covered in lanugo, or at least, more covered than it typically is... Gah.

I wish I could afford to go inpatient. I need a break, some hard-core internal work to sort things through once and for all.

20 February, 2007

Reply to a reader

An interesting comment was left here yesterday... It was anonymous, no e-mail, no name, so in order to reply to it I'm going to do so here. Readers, should you feel I'm out of line or agree with the commenter or have something to say about this whole business, please chime in. Feedback rules.

I've been following your blog for a while now, and here's a thought: instead of trying to find someone or something (modern society, religion, Hollywood, etc.) to take the blame for those entrapped in an ED, why not invest your energy into helping others like you did when you started your t-shirt project?

...Maybe I'm not making myself clear or perhaps you're misunderstanding me, but I don't think I EVER said society, religion, media, or any other entity was responsible for the eating disorder epidemic. In fact, if I've misstated myself in such a gruesomely inaccurate way I owe everyone who may ever have read this blog an enormous apology.

Eating disorders are in NO WAY the fault of an outside source. Eating disorders are a mental illness. That means that something at some point in time went wrong inside my (for instance) brain, causing me to distort the way I perceive myself mentally and physically. Additionally, that switch made it so that the standards I hold for beauty, health, perfection, and self-worth are warped into a nasty misrepresentation of reality. Normal people don't look at a drastically underweight model and think, wow! she's gorgeous! I should starve myself so I can look like her! No. There has to already be something wrong with that person's thinking to cause looking at someone emaciated to seem desirable.

Instead of looking in the mirror and seeing someone underweight, tired, but otherwise still acceptable and beautiful in the eyes of god and others, my mind takes all those features and twists them around into something disgusting. Either I see someone emaciated and sallow like a holocaust caricature, hair stringy and face a mask of dark hollows and ugliness, or I see someone puffy and jiggly and gluttonous whom I loathe for what I perceive to be greed and a total lack of self-control. For the first person, I hate her for abusing her body and being a hypocrite.

I cannot look in the mirror and see myself as others see me. I cannot think about myself and be proud of my achievements or my strides toward health without being overwhelmed by the thousand little things for which I hate myself.

That is what an eating disorder is. It's why it's called a disorder - the natural order of my thinking about my self and my body somehow got thrown out of whack. There is no logic driving an eating disorder. I'm not driven by a desire to look like a media image or modern societal pressures or a religious motivation for punishment. The reason I do discuss those things so frequently is that they DO have a part to play in EDs. Plus, I keep this blog as much for informative purposes as helping others. In fact, it helps and comforts me to see advances being made culturally and hear others comment on media and religion in a way that challenges ideals I might hold toward them.

While those things in NO WAY cause EDs, they undeniably contribute.
--> TV, magazines, etc, provide an abundance of visual triggers as they put underweight women forth as a positive examples of beauty and achievement.
--> Society embraces those images and translates the messages into something that, to an eating disordered mind, sounds like, "Unless you are emaciated, you are a failure and everyone hates you."
--> Religion - specifically the Christian religion - messes with our heads because there is so much emphasis on human failings and the need to put to death pride and sin. For someone who already hates him/herself and feels they are the completely worthless scum, this can literally cause suicidality. It can lead to forms of self-injury as a way to punish the self for any minor transgression. Eating disorders became the most rampant in any era and culture but our current one in the middle ages when Christianity took over Europe, because to starve oneself showed such great self-discipline and commitment to the faith. Oh! To love god so much that one didn't need to eat! Do you have ANY idea how many saints got their sainthood by starving to death??
...Breathe. Breathing. Okay. Point being. Religion is a HUGE contributing factor in many, many cases. It's why you hear of so many girls coming down with these disorders who are daughters of pastors and religious families, good, stable family, middle-class Americans. Religion.

Also, one more thing on that. Crystal pointed out that I need to balance this, because Christianity is not all bad. My experiences may have been, which is why I am so ranty about it, but many women also are helped by religion, even rescued by it. Many religious communities embrace women suffering from EDs and help them, encourage them, comfort them. They are understanding and nurturing and the wonderful safety that sufferers need.

The reason I tend to be so strongly negative toward Christianity is that I come from a background which was catalyst and even direct encouragement for many of my issues. I suffered too many years of being told panic disorder was my fault, depression was my fault, and anorexia was my vanity. Except not that nicely. I experienced nothing but pain at the hands of Christians who thought they were helping and, as such, am really bitter toward the religion. I don't claim to be any kind of expert on this subject. I just speak from personal experience.

Returning to main point: Being able to live and function healthfully as a member of society as it stands means that I, and others with EDs, have to learn to reallign our thinking toward these pressures so we can cope with them despite our messed up brains.

You are undeniably correct when you say our society is screwed up it's perspective on beauty (thin is in), but please don't throw the baby out of the bath water.

...I love the misstatement of that colloquialism. Otherwise, I think I covered this above.

A few screwed up people shouldn't be considered representative of the majority.

Agreed. Most assuredly agreed. But I still don't see what that has to do with any of the points I've been trying to make... I haven't made any attacks on celebrities or Christians (yes, I attack many dogmatic standards. That is DIFFERENT.) or teachers or whomever. I'm attacking what is already spoken of in a general, amorphous sense: beliefs and standards. It has little or nothing to do with "a few screwed up people".

I'm sure there are probably one or two whacko's at your place of business (Cheesecake Factory?), but it would be quite unjust to label you and your co-workers as whacko's based on the character of just a few.

Not to go into this much, but... You could probably label us all crazy, actually.

That's MY rant and I'm sticking to it. Now, go forth and do something good for yourself and for someone else today!

Well, you may not like it, but I feel that I just did something good for myself and others here. Sorry.

As a final note, I'd like to point out that this blog was not started with any mission statement saying it was going to be just encouragement for fellow sufferers. My goal has been as much to educate as to help - the t'shirts are information, not just personal statement.

And aside from that? It's also my journal in many ways. I write about what I'm thinking about. When I'm going through rough spells, it's not as cheery. When I'm pissed off it reflects that.

Yes, I want to help other girls. They are on my heart twenty-four hours a day. I start crying multiple times throughout the day when I see some girl walk by with a scar from an NG tube or dark hollows under her cheekbones or sores around her mouth. It tears me apart. I want more than anything to just take all that pain away from them, even onto myself if I could.

Speaking honestly about eating disorders, how they feel, what they do, and why they're happening, seems to me like a help for those girls. EDs are extraordinarily shameful and surrounded by stigma and misperceptions. Few people know any more about EDs than what they see on the news or the skinny girls they run into now and then. Education is helpful because if you actually know facts about what this is and what causes it you know better how to help and encourage.

Empowerment is help. Putting to death misperceptions is help. Education is help.

There are more ways for me to help girls with eating disorders than just a little note of encouragement every day. I'm trying to do all that I can, however I can, and will keep on doing so as long as I'm able.

17 January, 2007

Letters to Self

Dear Large Intestine,

Please poop. Seriously. We're worried about you! And besides - you're making things really miserable for the rest of us by being so damn stubborn. Whatever you may think in your twisted, cavernous mind, not pooping in no way makes you superior to the rest of the normal human race. Yes, humans are really gross. They eat, they poop, they piss, they fart, but it's still just something they gotta do. And in case you're forgetting? You're part of this body, too, and you have responsibilities.

So get on it. Go.

Sincerely,
Your neighbors in the digestive tract

***************
Dear Serotonin, Norepinephrine, Dopamine, and whomever else it may concern,
Where the hell did you go??? What is your problem?? We know that it's cold in Colorado but that is no excuse to go on some tropical island vacation without warning. There are lots of systems back here who really depend on you to function. We keep providing you with as much help as possible to keep up your morale; hell, you're probably the most pampered little beasts in this whole body. What more do you need? Silk myelin sheaths? Extra padded, fur-lined receptors? Suede dendrite gloves to keep you warm?
I mean, come on, this is ridiculous. Would you please just do your job so the rest of us can do ours?
Sincerely,
Brain, Tear Ducts, Energy, Body
***************
Dear Brain and Stomach,
There seems to be some sort of miscommunication going on between you two. We've checked the axons and the connection seems clear, no kinks or cuts in the line. Somehow, though, either someone's not listening or the message isn't getting through. We know Stomach is hungry because the rest of us aren't getting our fuel and instead have to listen to him complaining day in, day out. Hate to break it to you, Brain, but we can't force-feed him. It just makes him cranky and upset, and Mouth doesn't want anything either since you're apparently not sending him info either. Stomach's hungry but at the same time you're not sending him the message to tell him to eat or even make sure he knows he's hungry. You know he tends to be kinda stupid and someone's gotta get the message through since he doesn't understand himself.
We really don't have much fat left, here, man. Please send fuel soon.
Sincerely,
Muscles
***************
Eh. That's as clever as I can manage right now.